A rotina restabelecida

Back on a routine

Many good things have happened since Giovanni came home. We got home health care for him, and some of my concerns gradually dissipated. His seizures are under control, he has gained a lot of weight, we were able to give him his vaccines, and his G-tube button was changed. He gets weekly doctors’ and nurses’ visits, a consultation with a nutritionist every other week, and both physical and speech therapy 5 days a week, in addition to the team of nurse’s assistants who are here 24 hours a day, 7 days a week. This has allowed me to get my life organized. I went back to work and am able to take better care of myself. We want to celebrate Giovanni’s 1^st birthday in grand style, to show him how very happy we are to have him with us.

Muitas coisas boas aconteceram desde a chegada do Giovanni em casa. Conseguimos o Home Care e algumas das minhas preocupações foram  pouco a pouco sendo dissipadas. As convulsões foram controladas, ele ganhou bastante peso, conseguimos dar as vacinas e foi trocada a GTT. Ele recebe atendimento médico semanalmente, visita do nutricionista e enfermeira a cada 15 dias e terapia com a fono e com a fisio 5 vezes por semana e uma equipe de técnicas de enfermagem 24h, todos os dias da semana. Dessa maneira pude organizar minha vida. Voltei a trabalhar, a cuidar melhor de mim e do meu tempo. Queremos comemorar o aniversário do Giovanni, em grande estilo, demonstrando a ele toda nossa alegria de tê-lo conosco.

- Ana Cláudia