A Festa!
The Party!
The theme of Giovanni’s birthday party was the “Spotted Chicken,” a Brazilian cartoon character, which was chosen by his sister and his cousins Isabela and Marco Túlio Jr. It was great to be able to celebrate with Uncle Zeke, Aunt Kate, and cousins Luke and Isaiah, who came from the States, and with Aunt Sofia who came from Salvador, as well as our friends from the TCU, the meditation group, and the people who take care of him on a daily basis, with his grandmothers, all his “adoptive” aunts and uncles, the kids running around . . . Thank you very much for your affection and also for the good wishes of those who were not able to make it.
O tema da festa de aniversário do
Giovanni foi da “Galinha Pitadinha”, escolhido por sua irmã e por seus primos
Isabela e Marco Túlio Jr. Foi muito bom poder comemorar com o Tio Zeke, com a
Tia Kate, Luke e Isaiah que vieram dos EUA, com a Tia Sofia que veio de
Salvador, com os nossos amigos do TCU, do grupo de meditação, com o pessoal que
cuida dele diariamente, com as Vovós, os “Titios” e as “Titias”, a criançada....
Muito obrigada pelo carinho e também pela lembrança de todos que não puderam
estar aqui conosco.
Giovanni completa 1 ano de vida no dia 09/04. Fazendo uma retrospectiva de tudo o que aconteceu nesse período, pude perceber que a vida se renova a cada instante. Giovanni, tão pequenininho, já teve que passar por várias experiências nada agradáveis. Mas o importante é que ele está aqui em casa conosco, recebendo o nosso carinho e afeto e nos ensinando a viver um dia após o outro. Gostaríamos de festejar o primeiro aniversário do Giovanni com os nossos familiares e amigos e também com a equipe do Home Care, que nos auxilia a melhor cuidar do nosso Neném. Quero dizer a você meu filho, muito obrigada por você existir!
The Miracle of Life
Giovanni turns 1 on April 9. Looking back on everything that has happened this past year, I have learned that life renews itself at each moment. Giovanni, though so little, has already gone through many unpleasant experiences. But what’s important is that he is home, receiving our care and affection and teaching us to take life one day at a time. We would like to celebrate Giovanni’s first birthday with our relatives and friends and with the Home Care team, which has helped us to better care for our Baby. My dear son, thank you for being a part of my life!
Back on a routine
Many good things have happened since Giovanni came home. We got home health care for him, and some of my concerns gradually dissipated. His seizures are under control, he has gained a lot of weight, we were able to give him his vaccines, and his G-tube button was changed. He gets weekly doctors’ and nurses’ visits, a consultation with a nutritionist every other week, and both physical and speech therapy 5 days a week, in addition to the team of nurse’s assistants who are here 24 hours a day, 7 days a week. This has allowed me to get my life organized. I went back to work and am able to take better care of myself. We want to celebrate Giovanni’s 1st birthday in grand style, to show him how very happy we are to have him with us.
Muitas coisas boas aconteceram desde a chegada do Giovanni em casa. Conseguimos o Home Care e algumas das minhas preocupações foram pouco a pouco sendo dissipadas. As convulsões foram controladas, ele ganhou bastante peso, conseguimos dar as vacinas e foi trocada a GTT. Ele recebe atendimento médico semanalmente, visita do nutricionista e enfermeira a cada 15 dias e terapia com a fono e com a fisio 5 vezes por semana e uma equipe de técnicas de enfermagem 24h, todos os dias da semana. Dessa maneira pude organizar minha vida. Voltei a trabalhar, a cuidar melhor de mim e do meu tempo. Queremos comemorar o aniversário do Giovanni, em grande estilo, demonstrando a ele toda nossa alegria de tê-lo conosco.
- Ana Cláudia
